Frequently Asked Questions
Why is the CRANE Study important?
Breast cancer is the most commonly diagnosed cancer among most Asian American ethnic groups, contributing 10-20% of cancer-related deaths. While breast cancer incidence rates have steadily declined in the US, rates have increased among nearly all Asian American groups. International reports show rapidly increasing rates in Asia, such that breast cancer rates in some parts of Asia are the most rapidly increasing and may soon exceed US White women to be among the highest in the world. The CRANE study is invesitigating factors that are contributing to the rapidly increasing rates of breast cancer among Asian American women.
How are study participants identified?
In California, state law requires that doctors, hospitals and other facilities that diagnose and/or treat cancer patients report to the California Cancer Registry (CCR). In accordance with state law, the CCR can be used for approved and qualified research studies. We identify study participants recently diagnosed with breast cancer from the CCR. The CRANE Study Team follows all of the procedures and guidelines set forth by the CCR and UCSF to ensure that the rights and confidentiality of all our potential research participants are protected.
Asian women who have not been diagnosed with breast cancer (or any other cancer) are encouraged to email us at [email protected] or call us at 833-869-7730. You may also click the "JOIN STUDY" link on the right side of this webpage.
How can I complete the CRANE study survey?
Participants have the option to complete the survey in one of three ways:
1) Online (with a computer or mobile device)
2) By mail with a paper survey
3) Through a phone call with one of our interviewers
How will my privacy be protected?
All information collected in this study will be used for our research only and will be kept confidential. To protect your privacy, you will be assigned a study number and your name will not be associated with your responses. Confidential information and details about the study will be kept in a secure database. Data will be limited to approved and trained study staff. No results will be published with identifying information attached. The UCSF Institutional Review Board (IRB) reviews research studies to ensure the protection of study participants.
Learn more about breast cancer risk in Asian American communities
Breast Cancer Research Foundation podcast with Dr. Scarlett Gomez